I've made an appointment to drive from Michigan to Pennsylvania to see dr. Check because nobody here will help me, I've gained 25 pounds in two weeks. I've seen two primaries, a nephrologist, urologist, cardiologist and gynecologist and they all told me I'm either just getting fat or that im fat and need to be medicated for anxiety and depression. The diuretics helped for a little while then they stopped... and I'm beyond miserable.
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Hi Cathy,
Yes it has been a long time since we have spoken. So glad you are pleased with your renovations. Life does get busy and like myself, we sometimes like to forget all about this and just go when we feel good. We also have been busy in a good way. We purchased a shore house and spent lots of time at the water. It's like having a double life. LOL. We are doing well and my big pain was eating too much sugar and my neck kept going out of alignment. Ice cream overload. My weight is stable for the most part and has gone up and down with the crazy weather but nothing too much to stop me from going. I automatically increase by ten mg depending on the weather. Valerie lost all the weight but gained some back after finally finding pharmacy nearer to her but not the same so not as effective. She is still working on getting a pharmacy that will fill or mail order that is even closer in PA but we will see what happens. Dr. Check also increased her dosage. Did you see my post that Mrs. Check came out of retirement due to all the increase patients with this disorder. I felt like an apology was needed. There are a lot of us. Enjoy the rest of your summer and I am sure we will catch up soon. Ei
Hi Valerie,
Just shy of of 20lbs in a matter of days. It’s miserable for sure. I hope you found some relief after meeting with Dr. Check?
Eileen is right sometimes life takes over & there’s no edema so you take full advantage of the time & do as much as you can before it comes back. It’s nice to forget & feel normal. Fingers crossed you got help!
I am sorry no one answered you. It might be because I have not been on this site in a while and people just aren't writing as people are on the medication and perhaps have talked already about what their issues are. I hope you can get others who will respond to you. I also suggest looking at past posts to see what people have experienced. Many of us have discussed so much and when they are able to get back to their life perhaps don't want to think about it. I can post some letters without any names for privacy too, so you can see what others have gone through as well. Hang in there.