My new friend from Israel who has this disorder told me there is no site for this syndrome on Facebook. I want to reach more people this way. We are just up and running as of today and I will work on site over time. I want to do case studies on anyone interested so that I can compile, make comparisons and eventually forward to the specialists for further study and research. The more we can do to make this disorder known, the better it will be for all of us. We may then be able to address the Pharmaceutical companies that make Vyvanse, Adderall, and Dexedrine so that it can be "on label" and we won't have to jump through hoops to get the medication we need.
top of page
bottom of page
Thanks for making a Facebook group! I just requested to join. Happy to participate in case studies as well.
Oops! Happy to help with case studies. When you have a chance, can we have the Facebook page link or name to search? Thx!
Hi E,
What a great idea! I look forward to checking it out. cg