Hello everyone! I spoke to Dr. Check this past week for about 40 minutes. It was quite enlightening. I have decided to try Cabergoline which is prescribed for Hyperprolactinemia. I know that my levels are high already as a doctor years ago detected this and told me I had a brain tumor. I had a CAT Scan and didn't of course. It is often associated with the disorder. This medication is being used for our Increased Cellular Permeability Syndrome. It works well for some and not for others. It is worth a try. It is also used for menstrual and fertility issues. I have only taken 2 doses so far and it seems to help with my Gastroparesis, abdominal swelling. I will keep you updated once I am taking this for awhile. You only need to see Dr. Check ONCE A YEAR (yea) instead of every few months with the stimulants. I am to call Dr. Check about my progress in 6 weeks. It acts on the dopamine receptors in the pituitary gland, located at the base of the brain. You can easily google this for more information. Side effects have been low and drug is well tolerated according to Dr. Check. I already went from 1/2 pill twice a week to one pill now and will do that twice a week as well. He prescribes it for one pill three times a week as tolerated.
Those of you free falling without a net (no stimulant) may want to try this if unable to get the Adderall, Dexedrine or Vyvanse for your syndrome. He also sent many new articles and I will download them to PDF files and can forward to those who would like even more info. I will download to this site as well. It won't be for several weeks as the grandchildren are visiting and arrive today. Best of health to you all. I am continuing the fight as well here in New Jersey. Very time consuming with letters and senators, etc. but worth it.
Hi Eileen! Did the Cabergoline work for you?
Thank you very much for all the info!! 😘
Hi Eileen! This is such good news I’m so happy for you I truly hope that it continues to work. Please keep us posted it’s worth a try for sure. I’ll have to check and see if it’s a drug I can get in California yet it doesn’t sound like it perhaps. Nonetheless enjoy the grandkids and let us know how you’re feeling 2when you have a chance. Hugs!