I have spent a lot of time on this forum and know that this is a common but under diagnosed disorder. I would hate to let it go but I am tired of talking to myself. ;-) Please share anything that is pertinent to this disorder or if you have some of the symptoms but are unsure if you have this condition. Would love to hear from you!
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I have not but I imagine there would be variations and not everyone will experience all of these symptoms. I never had problems with a Raynaud's type syndrome before a physician was treating me with "natural" supplements and it overloaded my system. I became nauseous and felt very ill and this "detoxification" caused me to develop this. It was an overload on my system. We must be careful doing things to our bodies that other doctors just don't understand. I will always check with Dr. Cohen and Dr. Check before doing anything in the future when uncertain.
I’d be curious to hear about the symptoms that others have, find it fascinating that in general will have many of the same symptoms but one of us or two of us will have some quirky thing while the others don’t. For example, before the swelling begins I have a funny taste in my mouth, it’s hard to explain but when I drink water It’ll taste as though someone dumped sugar in it… Does anybody else experienced this?
I decided to keep it up as most people have not posted but have emailed me. I have been able to help several people from different areas in the U.S and in Europe. I look forward to hearing from you when you have more time.
Dont go away. I just found your site this morning. I'll have a lot to say when I have more time. I'll also have some questions.
For now I'll just tell you I'm a 65 yo male who has had general edema issues----and weight control problems---since about 1976. This began about half-way through my 9 1/2 years on active duty in the USAF.